| Grantee | Grant description | Grant year | Amount |
|---|---|---|---|
| New York University (NYU) | Early Investigator Award | 2021-12 | $308,750 |
| Dana-Farber Cancer Institute | Early Investigator Award | 2021-12 | $308,750 |
| University of Notre Dame | Early Investigator Award | 2021-12 | $308,750 |
| ...and 105 more grants made totalling $15,076,265 | |||
| Grantmaker | Grantmaker tax period | Description | Amount |
|---|---|---|---|
| American Diabetes Association (ADA) | 2021-12 | Research | $6,220,482 |
| Fidelity Investments Charitable Gift Fund | 2021-06 | For Grant Recipient's Exempt Purposes | $458,840 |
| Raymond James Charitable Endowment Fund | 2020-03 | General Use And/or Special Fund/project | $100,000 |
| ...and 14 more grants received | |||
| Name | Title | Compensation | Date of data |
|---|---|---|---|
| Robert A Gabbay | Chief Scientific Medical Officer and Office of the Chief Executive Officer / Chief Science and Medical Officer | $0 | 2021-12-31 |
| Tracey D Brown | Chief Executive Officer | $0 | 2021-12-31 |
| Kathy Nesbitt | Chief Operating and Strategy Officer | 2021-08-18 | |
| Charlotte M Carter | Chief Financial Officer | $0 | 2022-10-06 |
| Jacqueline Sebany | Chief Marketing and Digital Officer | 2021-08-18 | |
| ...and 20 more key personnel | |||
| Revenues | FYE 12/2021 |
|---|---|
| Total grants, contributions, etc. | $9,787,622 |
| Program services | $0 |
| Investment income and dividends | $6,537 |
| Tax-exempt bond proceeds | $0 |
| Royalty revenue | $0 |
| Net rental income | $0 |
| Net gain from sale of non-inventory assets | $0 |
| Net income from fundraising events | $0 |
| Net income from gaming activities | $0 |
| Net income from sales of inventory | $0 |
| Miscellaneous revenues | $0 |
| Total revenues | $9,794,159 |
| Fiscal year ending | Date received by IRS | Form | PDF link |
|---|---|---|---|
| 2020-12 | 2021-10-26 | 990 | View PDF |
| 2019-12 | 2022-01-25 | 990 | View PDF |
| 2018-12 | 2019-12-05 | 990 | View PDF |
| 2017-12 | 2019-02-21 | 990 | View PDF |
| 2016-12 | 2018-01-18 | 990 | View PDF |
| ...and 7 more Form 990s | |||
| Organization | Type | Location | Revenue |
|---|---|---|---|
| International FOP Association | 501(c)(3) | North Kansas City, MO | $2,800,436 |
| Financial Education and Research Foundation (FERF) | 501(c)(3) | Morristown, NJ | $3,255,645 |
| Arkansas Children's Research Institute (ACHRI) | 501(c)(3) | Little Rock, AR | $28,013,830 |
| Ehlers-Danlos Society | 501(c)(3) | New York, NY | $4,237,967 |
| Lumind Idsc Foundation | 501(c)(3) | Burlington, MA | $5,267,215 |
| MDS Foundation / The Myelodysplastic Syndromes Foundation | 501(c)(3) | Yardville, NJ | $3,289,167 |
| Melanoma Research Alliance (MRA) | 501(c)(3) | Washington, DC | $8,116,130 |
| ALS Therapy Development Institute (ALS TDI) | 501(c)(3) | Watertown, MA | $10,248,613 |
| One Mind | 501(c)(3) | Rutherford, CA | $6,157,618 |
| Dystonia Medical Research Foundation | 501(c)(3) | Chicago, IL | $2,942,734 |
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